I’m 1 in a million!
I am Full of Purpose
What is FOP?
Fibrodysplasia Ossificans Progressiva, otherwise known as FOP, is a 1 in a million disorder. There are about 900 confirmed cases globally, making it an ultra rare disease. Currently, there is no cure for FOP. FOP is the only medical condition that turns one organ system (muscles, tissues, and ligaments) into another – bone. This condition…
Welcome!
Hi everyone! Welcome to my official blog “Bernie’s Fight”. Here, I’ll share my Fibrodysplasia Ossificans Progressiva (FOP) story. From when I was diagnosed at 7 until now at 30 years old. I’ll share my experiences, memories, and even some advice that could help all other FOP patients. My goal is to advocate for FOP and…
Bernie’s Fight 